jm's Adventure with Multiple Myeloma: Relapsed High-Risk Myeloma - Update - June 2 2013

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Sunday, June 2, 2013

Relapsed High-Risk Myeloma - Update - June 2 2013

Up at o'dark thirty to get Jeff and Carol on their way back to Colorado. Per usual, we have to meet at Sammy's to see our father for the goodbyes who helps open Sammy's DAILY and makes their coffee. Below, Judy, Jeff, Frank, Carol, and Jani June 2 2013.
And Jeff and Carol are off for 680 miles today!
 I came home for a nap. Still not getting used to "my dex look".
My resting pulse is 92, so I'm pretty sure my hemoglobin has dropped below 9.0. I will probably need a packed red blood cell transfusion on Tuesday, 4 June 2013 when Jani drives me to St. Luke's Hospital in Twin Falls, Idaho for my appointment with Dr. Padavanija, SPEP Blood Test, and beginning of Cycle 2 of Bendamustine. .
Jani cleaned the house and changed the beds. She is such a hard worker.

Walked the dogs slowly around 2 blocks late this afternoon. Kemmer wants to be right by me all the way!

My gait is weak and I'm very careful NOT TO FALL DOWN with only 31 platelets.
On the way home from our walk, I had a long chat with my good friend, John Powers who was out driving in "his office" - his pickup. We call it "his office" because he keeps ALL of his mail in there - junk and good alike!

In 2005, I helped John compile a history of Mackay, Idaho book entitled, "The Mackay I Remember" by John L. Powers. John and my mother, Marjorie Christine Lundberg Malkiewicz graduated together from the Mackay High School in 1942.


  1. What was your resting heart rate when you pre cancer? My resting heart rate is always very high, usually around 99/100, every single day. When I am active and try to do things it sky rockets.

  2. Hi Fee, my resting pulse prior to my myeloma diagnosis was wonderful in the low 60's. I believe the 2 failed autologous stem cell transplants and all the chemotherapy that I have received have damaged my heart. However, since my myeloma is high risk and relapsed, it probably isn't anything my oncologists want to explore now.

    I'd say you need to have your hear rate evaluated if your resting pulse is 100 or higher - that is considered tachycardia and could contribute to the formation of blood clots...but, I'm not a medical doctor.

    Hope you and yours have a great day. Judy Malkiewicz, Mackay, Idaho