jm's Adventure with Multiple Myeloma: Relapsed High Risk Myeloma - Update June 24 2013

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Monday, June 24, 2013

Relapsed High Risk Myeloma - Update June 24 2013

During the night I had left hand cramp spasm...hard to get rid of it and finally wrapped my hand in the heating pad, which helped. Worried most of the night that I would NEVER be able to type on my computer again - but, it finally went away.

Woke and showered...felt pretty good and then I just FELT TERRIBLE for the rest of the day. Terrible gastritis, shaky, brain wasn't working well, some dizziness, and my resting pulse seemed stuck at 102 or so. Just laying on the sofa, doing nothing, had sustained pulse of 98 to 102 with shaky hands.

Today was a Dex 10 mg day and I took it after breakfast - didn't help me feel any better. 

Jani drove Sare to the Idaho Falls Airport for a mid-day flight back to DIA in Colorado where they have a mountain cabin - they (she and Randy) live in Hawaii. It was nice to share my corner of the world with Sare.

Then, Jani went shopping in Idaho Falls and didn't get home until around 3:30 PM. I was still feeling ROTTEN and went to bed. My resting pulse had fallen to around the mid-80's.

All I can figure out, is that I OVER DID it at the rodeo parade and rodeo Saturday and tour of the Mine Hill on Sunday and I PAID THE PRICE today. I had creepy legs all day.

About mid-day, my neighbors turned 16 of their horses out in the pasture behind me. I love watching them.


  1. how did you find Mackay how long you live there looks like such a wonderful place to live. JOE

  2. Joe, my grandparents moved here in 1917 from Utah after their parents had come from, I didn't "find it" gene pool did. But, I'm the only one with myeloma - oh, lucky me! jm

  3. your not alone my gene pool has given me myeloma i wonder all the time how i was lucky enough to get this when only twelve thousand a year get it i have a better chance of hitting lotto,now i wonder what you and I have incommon that makes us both have it. thank for your reaponce i love your blog and pictures and your stories look foward to it every day say hi to your sister she is doing a good thing being there form you. Joe

  4. Judy,
    I am sorry we all have MM it is a relentless disease but I love your blog, your town and the multiple generations! Your nursing background offers us all a special insight into MM and its treatments. I appreciate your outlook on life and you are a terrific role model, I look forward to each chapter of the blog

  5. Yes, my nursing background helps...However, I had never studied myeloma back then. Interestingly, my boss was diagnosed with myeloma in 1998 and had one of the first autologous stem cell transplants in 1999. She is still alive...obviously does NOT have the DNA Cytogenetic changes type of myeloma that I have. jm