Summary February 8 to February 12 2013

February 8 2013: Couldn't sleep last night and finally got up at 3:15 AM...might as well do something than fret that I cannot sleep. 

My guts are hurting. I took Pepcid on top of Zantac and Prilosec with a little relief. The burning sensation in my stomach with pain that radiates around my chest feels best when my stomach is FULL. 

I noticed today for the first time a little bit of hair in the shower drain - the first hair that I've lost since March 2012! I think this is just normal hair growth and loss.

February 9 2013: Slept much better and have a lot more energy today. Continued gastritis and I took Pepcid again. Worked all day on my medical deductions for my taxes and I'm almost finished.

February 10 2013: Again, slept better and my energy seems good. Revlimid Day 12/21 and diarrhea as usual. Continued gastritis.

The bruise by my Bard Power Port continues BRUISED.

I can take Dex 10 mg on Sunday's, but decided not to - mainly to control my appetite.

I walked Kemmer 1.28 miles. Windy and cold.

Mine Hill from Big Lost River Smelter Bridge Feb 10 2013

New hat from a friend in Alaska. She made it!!!!

February 11 2013: Woke really TIRED this morning. Finished up my taxes and got them in the mail this morning - YEA!

The injection sites on my abdomen have been oozing a little bit of blood (very little), so, I think my platelets must be low. I only gave myself 7,500 units of Fragmin tonight instead of the normal 15,000 units. Called and ordered more Fragmin which will be delivered Friday, 15 Feb 2013.

No walk today because it is just too cold outside.

February 12 2013: 
Bruise continues next to my Bard Power Port, but it starting to change colors in healing.

Summary February 1 to February 5 2013

Feb 1 2013 (Friday): Walked Kemmer 0.82 miles.

Saw a not so lucky porcupine along side the road. They are really cute animals.

Feb 2 2013 (Saturday): Walked Kemmer 1.32 miles to the Big Lost River Smelter Bridge. I had upper back pain across my scapula especially on the right side, so I took ½ Percocet, which really helped. I haven’t taken any Percocet since 20 Dec 2012 when I needed it for my post- Bard Power Port placement. Plain Tylenol has been helping adequately with my leg and back pains. I decided to hold my Fragmin injection, which probably wasn’t a good idea. I took ½ Imodium because I am back on Revlimid 10 mg (Day 4/21) and it always gives me diarrhea.

Feb 3 2013 (Sunday): Walked Kemmer 0.82 miles. 

I took ½ Percocet twice for leg pain and “creepy legs”. Started back on the Fragmin 15,000 units injection. I can take 10 mg of dex on Sunday’s and I decided not to take it since I was able to maintain my walking schedule. I had a little bit of chest pain, especially on the left side, which I attributed to stomach acid. I took Pepcid and felt better even though I take Zantac and Prilosec twice daily on a regular basis. My stomach is ALWAYS a bit upset.

Feb 4 2013 (Monday): Didn’t walk Kemmer today because I used all of my available energy to help at the Mackay Food Bank – filling boxes. I wore gloves and mask the whole time – but, I kept up with everyone. I can't believe they haven't fired me since I've missed so many months.

I decided to take just 7,500 units of Fragmin today since my abdomen is one bigger bruise than it usually is from the injections. I took ½ Percocet twice again in the 24 hours for leg tightness, but I’m sure I do not need it.

Feb 5 2013 (Tuesday): Decided not to take any more Percocet for the time being. I walked Kemmer 0.82 miles. 

Stopped to talk to my neighbor who is here to ice fish on the Mackay Dam…always enjoy our visits.

Used my available energy to vacuum part of the house after a friend carried my inversion table upstairs to get it out of the way. Spent a fair amount of time one-with-my-sofa. In fact, my sofa is a big part of my life every day!

2nd ASCT - Day 111 - September 6 2012

Zolinza effects so far. Last night I almost threw up around 9 PM, but did not. I was careful to sleep more upright. Interestingly, I was not nauseated, I just had esophageal reflux suddenly which is very unusual for me. 


I also noticed that I had my post-shingles pain in my upper back area on the right side. I haven't noticed this for at least a month, so I hope I'm not going to break out in the shingles again. I take my Famciclovir 500 mg every 8 hours using an iPhone app called Pillboxie. I highly recommend Pillboxie to anyone who has to remember to take meds and has an iPhone.










Slept better last night, took a Pepcid in the night, and woke without an appetite, but not nauseated. I think this is good since the dexamethasone 10 mg has had me ravenous and eating every thing in site. I think I gained 8 pounds over a 2 week period, but that may not be true since my clothes seem to fit the same.

I also have increased burning neuropathy which I have experienced as a burning sensation on the bottom of my left foot, radiating up the back of my left leg to my thigh area. I'm sure this  is a Velcade issue, even though I am getting it subcutaneously.

I have good energy today. However, my lack of appetite continues - I eat anyway! Ha

The air quality improved here in Mackay Idaho overnight from the forest fires and Kemmer and I walked the Mine Hill 1.50 miles with ease.

Kemmer looks heavy below, but it's all HAIR~

We went to my niece, Lindsay's Memorial for a visit. Miss you Linds.

2nd ASCT - Day 92 - August 18 2012

Rested most of the afternoon by scanning a gazillion Mackay Idaho photos and stories. Check out my Mackay Idaho 83251 blog if you're interested in Mackay history and current events at http://mackayidaho1.blogspot.com/ 

Poor Kemmer needed a walk, so around 6 PM, we STROLLED and I mean STROLLED SLOWLY to the Big Lost River Smelter Bridge and HIll of Dreams (1.38 miles). That makes 4.48 miles for me today. The only thing that bothers me is my mid-back by my scapula and that's only a little pain. A lot less of the forest fire smoke this evening and lots of people were out an about.

My gastritis is back and I happily take my Prilosec and Zantac every 12 hours with a Pepcid thrown in too mid-day.