Relapsed High Risk Myeloma - Update June 5 2013

Threw up in the night - no nausea, just a "surprise emesis".  Still no nausea, but my gastritis is back.

Checked out of the motel in Twin Falls and arrived on time for my 8 AM St . Luke's Hospital Day 2 of intravenous Bendamustine. Pharmacist Dave thought it would be best that I went back to intravenously Aloxi for pre-treatment vs. intravenous Kytril, so we did that along with 10 mg of Dex intravenously.

We were at the Infusion Center way too long for a 30 minute Benadmustine infusion and no lab draw today, but I think they are short of nurses right now (maybe for vacation, etc). Oh well, I was patient and didn't let the delay get to me like I can some times do!

I slept almost all the way home in the back of Bart (2006 Honda Pilot) while Jani drove. I'm pretty sure Aloxi makes me tired. We stopped at the Lost Rivers Drug Store in Arco, Idaho to buy a couple of pill strip box organizers - it is the only way I can keep track of my medications and if I've taken then or not.

We stopped at the Chevron to put gas in Bart...always try to keep it filled on the advice of my mother many years ago - if you need to leave Mackay and the Big Lost RIver Valley, it is always good to be prepared with a full tank of gas.

Stopped to say hi to Paco and give him his shopping items from Twin Falls. He took care of 12-year old Kady-the-golden retriever, while Clark and Dianne Parker took are of Kemmer and Zoe. All 3 dogs were exhausted when we got home.

 emmer and Clark surveying a beaver downed tree on Kid's Creek which borders the back of their property.

Jani's after haircut look.

I might try to have my hair cut in Twin Falls the next time we go. It is still VERY CURLY and won't comb in to any style I'm formerly used to.......

Jani got this great photo of the mule deer behind my house tonight. I never tire of seeing the, but they aren't eating "my hay" either.

University of Colorado Hospital 11th Floor Oncology Pharmacist Came to visit August 24 2011

University of Colorado Hospital 11th Floor Oncology Pharmacist, Jeff, came to visit August 24 2011.

He brought an elaborate calendar with all the medications I would be taking related to the 2nd stem cell harvest (I take other medications too like Celebrex, Lovastatin, Levothyroxin, and others that are not included in this calendar)..

Jeff said my hair may take up to 3 weeks to fall out from the Doxorubicin (Adriamycin) primarily. I'm not at all concerned with the hair loss.

The good news is that my Thalidomide pills are in the building!! Just one day late. My Transplant Coordinator, Dana Godec, RN took care of this. She probably devoted much of the morning to this task - making phone calls to the Curaspript Pharmacy that was supposed to deliver the pills and DID NOT and then getting approval from my insurance to get them at a locate pharmacy that she actually drove to herself to pick up the pills. Dana makes things happen and has excellent follow through. I'll get my first pill at bed time tonight.