However, the references for the poor prognosis listed on the back page of the results are from 2000 and 2003. The chemotherapy I've been on, Velcade and Revlimid, weren't available back then, so I'm taking the POOR PROGNOSIS with a grain of salt for now.
Here is the whole report if you want to wade through it.
I still don't have the bone marrow results for myeloma load. Remember, my initial myeloma load at diagnosis was 80 percent. They are forecasting the load as of August 10 2011 to be between 5 and 10 percent, but I don't have the official report yet. I also don't have my free light test results along with the latest M Spike value from the blood drawn August 10 2011 at UCH. I had blood drawn for free lights, immunoglobulins, and M Spike (that will be done at the Mayo Clinic) yesterday at Dr. Moore's office.
I wouldn't deem myself a chromosome expert however after having looked into it recently at the prospect of finding my own results out, I can tell you that I came across reference at least three times to the chromosome 13 deletion no longer being the issue it was since the introduction of Revlimid. :D
ReplyDeleteThanks for you comment on the deletion of chromosome 13. I, also, had read that it was less of a poor outcome forecaster too. All of my other new chromosomal changes seem to be mutations to the chemo. My M Spike is down to 0.4 from 3.0 - so that is good. jm
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